Vol. 1, No. 9

November 2002

Jerry Bylander, Editor jerryby@texoma.net

FEATURE ARTICLES

The Managing Director's Column

To our members and friends:  We often hear how great it is to be retired, and it is!  But retirement is not without stress.  In addition to the normal stresses of daily living and additionally cancer, we have the additional stresses of aging.  And the stress of paying for the concomitant medical bills.  I recently returned from the oral surgeon, who is a great guy by the way, and learned that a minor gum removal will be $4000 give or take.  And two great friends have died recently and others have been diagnosed with cancer.  It then becomes somewhat more of an exercise to practice PMA, positive mental attitude when I get up.  It also helps to remember, "one day at a time".  See you at the meeting.  Jerry
Remember you are an important part of our support group. USToo! Texoma needs you.
See you at our next meeting.

Dr. Jerry Bylander is the Managing Director of USToo! Texoma

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Next Meeting: Dr. J. Patrick McGrael, Urologist

Date and Time:  Tuesday, November 19, 2002  6:30 pm - Social Hour  7:00 pm - Program
Location:  Senior Center, Wilson N. Jones North Campus, South Entrance, 3305 Calais Drive
Topic:  "Prostate Cancer: Screening for Early Cancer and Preventative Options"
Speaker:  Dr. J. Patrick McGrael, Urologist, offices in Denison, Texas

Program:  "How your pathologist can help you with your prostate cancer diagnosis and treatment"
 
Speaker:   Dr. J. Patrick McGrael, Urologist

Dr. McGrael is well-known in the field of Urology and is well-qualified to discuss your options.  He will tell us how you can recognize early stage prostate cancer and what are the preventative options.  He will answer your questions about therapy choices and their prognosis.  We particularly encourage minorities to hear this presentation because you are at higher risk than the general population.  Also this program is geared for new guys, but you older members will want to be here to share your experiences.  At the end of the program Dr. McGrael will take a few minutes to discuss prostate cancer treatments he sees coming down the pike.  He will remain afterwards to discuss your particular questions.

The meeting is free to all attendees.  Also members who have had radiation, brachiotomy, or radical prostatectomies will be available to discuss their outcomes with you.
About the Speaker:  Dr. McGrael was educated at Austin College and at Baylor College of Medicine in Galveston.

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Last Meeting: "How your pathologist can help you with your prostate cancer diagnosis and treatment"


Dr. Joseph Barnes, 
 
Tuesday Evening, October 16, 2002  
Texoma Medical Center


Denison, Texas

6:30 PM - Social & Coffee
7:00 PM - Program

Attendance:  Estimated 25

Topic:  "How your pathologist can help you with your prostate cancer diagnosis and treatment"
Speaker:   Dr. Joseph Barnes, Pathologist

Dr. Barnes described the work of the pathologist and gave us an insight into diagnosis of prostate cancer and its severity.  Then what the treatment options were based on his grade. He will also answered our questions about therapy choices and their prognosis. He also will took a few minutes at the end to discuss what prostate cancer treatments he saw coming down the pike.  Also members, who had radiation, brachiotomy or radical prostatectomies, were available to discuss their outcomes.   

Old Business

None.

New Business

None

The meeting adjourned about 9 PM.

Henry Puckett, Program Chair/by the Editor

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Other Important Events

Your organization's meetings listed here. Contact the Editor at jerryby@texoma.net

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Editor's Notes

Random thoughts from your editor

MD Anderson: How to combat fatigue
Cryosurgery
Advanced prostate cancer
Newer radiation methods

M.D. Anderson:  Dr. Truett's suggestions on how to combat fatigue

(taken at the MD Anderson Network meeting in October)

First he tells us to recognize when and that we are fatigued.  This can be a special problem for cancer patients.  Then describe to yourself the times when fatigue is most troubling and evaluate what helps.

Conserve your energy

  • Prioritize - focus - make a list
  • How to make the lists:  delegate List 1 - tasks List 2 - helpers List 3
  • List 1:  Delegate - first ask, "what do I want to do?"  Then, "does it matter how it is done?  What are the resources available to do the needed tasks?"  Then match the tasks to what you want to do and those that don't matter how and the resources to those you will ask to help.
  • List 2:  Tasks - Must be done.  Should be done.  Nice to be done.  Can wait.
  • List 3:  Helpers - List of helpers
  • Work efficiently on your tasks by planning and careful execution
  • Pace yourself
  • Ask for help to manage other symptoms

Simplify your life. 

Ed: I hope this advice will be helpful to you.

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Cryosurgery

Have you heard about cryosurgery?  I recently asked my doctor at MD Anderson, Dr. Babaian, about it, and he spoke favorably of it.  It is a method similar to brachytherapy or seeds.  The local people that do it are CryoCarePCA in Arlington.  I know nothing about them, but they recently offered to do a program.  The therapy itself is one of inserting 6 cold probes into the prostate, and an ultrasound imager in the rectum and a warm probe into the urethra to avoid urethral damage.  The advantage of the method is that the probes can be moved to all parts of the cancer during the treatment.  The initial ice ball is formed to kill the adjacent cancer, then the probe is moved.  The procedure is new, and data is for only three years, but low Gleason score patients have almost 100% cures (as Dr. Babaian says, "there are no 100% results in medicine").  Think about it.

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Advanced prostate cancer

Many of you have called my attention to the article in the give-away magazine Cure (Fall 2002, p. 26) that somehow we receive through the mail.  As you have reported and I found, it is an excellent review of prostate cancer by a woman, Catherine Grillo.  If you don't have a copy, ask a friend.  Unfortunately, the advanced treatment is limited to hormone treatment, and as you know it has side effects of muscle loss, bone loss, weight gain, hot flashes, and breast growth.  Our hope is that some cures for those not cured now will be soon be coming down the pike, such as vaccination and gene therapy.  Vaccination works by taking some of your cancer and teaching the immune system to respond.  Gene therapy replaces the defective gene (three kinds, so far, have been identified) with a good one.  One can only hope, and perhaps write one's congressperson to keep the dollars flowing for research.

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Newer radiation methods

Those of you who attended our (Man-to-Man) radiation meeting at TMC, where we got the grand tour and education about treatment methods, know that TMC has guided beam therapy and wants to get IMRT apparatus.  The IMRT modulates the treatment so that adjacent structures get less damage.  Of course the providers neglect to explain the side effects which include somewhat uncontrollable bowels and urinary pain.  

Apparently MD Anderson has the only the only IMRT capability in the state.  There are some drawbacks to treatment in Houston.  Should I choose to irradiate the bed, since my cancer is growing, I would need to spend seven, 5-day weeks getting a 900 tissue Rad (Grays?) radiation dose a week.  

Also MD Anderson is hiring new people to better understand and develop radiation therapies (ad in Physics Today, Nov. 2002, p. 104).  They are also getting a proton beam machine, but my doctor expresses some doubt about its utility.  For more detail on IMRT therapies see the special issue of the September, 2002, Physics Today.  I believe this magazine is carried in both the GCC and the Austin College libraries.

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Jerry Bylander - Newsletter Editor

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