Vol. 2, No. 5

May 2003

Jerry Bylander, Editor  jerryby@texoma.net

FEATURE ARTICLES

The Managing Director's Column
To our members and friends.   Readers of this column will recall that I have been undergoing radiation therapy.  Some of the side effects are those associated with extreme fatigue.  That is irritability, mood swings, lack of patience, difficulty in making decisions, and confusion.  Recently I attempted to renew my virus program "online".  I couldn't, no matter how hard I tried.  As a result of this experience, I would advise those of you who are undergoing radiation therapy not to undertake any new projects, and especially any that involve a computer.  Jerry Bylander
To all our friends and supporters, Dr. Jerry Bylander's personal note in 
last month's Directors Column is a classic case in the diagnosis of 
prostate cancer.  I personally study PC on a continuing basis to help 
our group and to share current  information and thoughts on tough cases 
of PC.  Jerry mentioned in his article that guidelines had changed and radiation 
therapy should have been administered two years prior to his doctor's 
current decision.  I am personally of the opinion that poor information or wrong 
information in this setting is a tragedy.  This problem is why men with PC or 
suspected PC need to attend our local US-TOO meetings on a regular 
basis.  Our group can or will provide you with the additional information 
you need to help you assist your physicians or raise questions about their 
decisions.  In the case of Dr. Bylander, what if after he receives radiation to 
the prostate bed, but then  his PSA slowly starts to rise?  The answer can 
be found at our meetings.  Prostate cancer can be managed with knowledge, 
and more than that, this cancer can be cured if detected early enough.  Be 
assured that it can be with the yearly PSA and DRE exam.  For more
information on your CaP contact me, Henri, or other directors at our 
monthly US-TOO meetings.  Henri Plunkett

Remember you are an important part of our support group. 
USTOO! Texoma needs you.
See you at our next meeting.  

Dr. Jerry Bylander, Managing Director, USToo! Texoma

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Next Meeting


"
What is Cryotherapy and is it a Therapy for my Prostate Cancer?"    

Date: Tuesday Evening, May 20, 2003
Location:  Wilson N. Jones North Campus Senior Center, south entrance, 3305 Calais Dr. For directions see the map below

6:30 PM - Social & Coffee
7:00 PM - Program

Speaker:   Ewing Cooley,  Arlington,  TX

Program:  Mr. Cooley is a representative of Karren Barries' cryotherapy group in Arlington, TX.   Cryotherapy is much like brachytherapy in the sense that it is accomplished in a few hours, and after the catheter is removed the patient is usually allowed to return to his home.  Mr. Cooley has had the procedure and remains cancer-free at this time.  The procedure is advertised as a competitor to brachytherapy, but the survival rates --- reported to be above 98% -- are only available for the last three years, since it is so new.

At the end of the program, we will take a few minutes to discuss prostate cancer treatments of interest to you based on members' experience who have had radiation, brachiotomy, or radical prostatectomies.

Speaker: Mr. Cooley is a prostate cancer survivor who has had cryotherapy.

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Last Meeting  "Understanding how our new modulated beam x-ray machine can help with your cancer therapy"
Date & Time: Tuesday, April 18,  2003, 7:00 PM
Place: TMC Cafeteria
Attendance: 5 or 6 attendees


Old Business

None.

New Business

 None.

Program:   "Understanding how our new modulated beam x-ray machine can help with your cancer therapy"

William J. Hittson, M.D.  TMC, Denison

Speaker:  Dr. Hittson did his residency at UTMC Galveston.  He is well-qualified to discuss the applications of TMC's radiology systems.

Program:  Dr. Hittson described TMC's new modulated beam x-ray machine.  The addition of modulation to radiation treatment of cancer can reduce tissue damage away from the cancer, and Dr. Hittson described how we can benefit from this machine.

The meeting adjourned about 9 PM.

Henri Plunkett, Program Chair/by the Editor

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Other Important Events
The Surprise Challenge, The fourth annual Move it For Dad" , benefit for prostate cancer awareness, Sat, October 4, 2003, Sun City Grand Surprise, AZ, $15 registration. More info: www.sw-prostatecancer.com 

National Conference on Prostate Cancer, 2003, 
Sponsors, USS Too!, FCRE, Prostate Institute of America, Community Memorial Hospital, September 6, 7 & 8, Hilton Burbank Airport and Conventiaon Center, Burbank, CA, Contact:  <www.pcri.org> .

Your organization's meetings listed here.  Contact the Editor at jerryby@texoma.net

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Editor's Notes

Random thoughts from your editor

The Bell Curve
News you can use
A Warning for radiation therapy patients
A Word to the wise, or why attend our meetings?

The Bell Curve

You remember the bell curve.  You know the one your class begged the teacher to 
use whenever they really blew the test.  This is the curve that gave mostly C's,
some B's and D's and less A's and F's.  Similarlly the practice of medicing is 
mostly based on this same curve.  This distribution is where most patients fit.
It is not helpful if you are in the minority of  cases. For example, when you are
told that you have an 80% chance of recovery, this may be just an educated guess
on the part of your doctor, or when studies justify the number, it may be for 
the bulk of patients.  That is the findings are for a large group of similar
patients, but don't and can't hold for individuals.  Therefore doctors must fit
you into the proper niche: A, B, C, D or F.  This is what is meant by the practice
of medicine. Jerry Bylander.

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News You Can Use

You can find news you can use at the USToo International web site: http://www.ustoo.org/.  Check it out for the latest references.

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A WARNING FOR RADIATION THERAPY PATIENTS                                                                                 Radition therapy to the 
Radiation of the prostate gland usually delivers a sizeable dose of radiation to the 
rectum and the colon. As a result patients will often have radiation 
damage within these normal tissues.This can cause diarrhea, bleeding and 
rectal pain; however other diseases such as colon cancer can also cause
 these symptoms. . The usual work up for rectal bleeding is a colonostopy to 
look for polyps or cancer. The big problem is after radiation therapy 
the rectal and colon tissue are very fragile and heal poorly. You must be sure 
to alert your physician to this condition during a colon workup, as there 
are many reported disaters caused by biopsies done during a colonscopy. 
As you might guess, these complications can lead to very serious complications 
such as bladder infections and other problems. If your doctor recommends 
colonscopy or sigmoidoscopy, make sure that adequate precautions are 
taken to avoid injury to the front part of the bowel located adjacent to 
the prostate gland.  Henri Plunkett.

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A word to the wise, or why attend our meetings?
              
When I have talked to men who have attended prostate cancer support groups
at one time or another, they sometimes have stated they felt some meetings
left them a little blue.  They noted they came to a meeting for great or 
good news about prostate cancer (CaP) only to discover this disease was a 
complicated issue.  Some of talk and discussion confused or was somewhat
depressing to them.  They expected better news or even that they might not
have to worry about  their newly diagnosed prostate cancer.  Welcome to 
reality, everyone.  First, all forms of cancer are potential killers and 
second no cancers just go away because one doesn't want to face his
responsibility in confronting this disease.  Second, after he decides on 
a treatment for his cancer, is his ordeal over?  Does this mean one would 
be through attending the CaP cancer information group?  TO THE CONTRARY, 
what happens if your cancer returns?  What to do, run back to doctor and 
ask what's next?  Better, perhaps, by regular attendance and education about 
CaP, you would know your options or your next recourse for 
therapies.  KNOWLEDGE REPLACES FEAR, and by the gift of knowledge you can 
be instrumental on the battle of your cancer.  You may even help someone else 
who is facing  your similar situation.  Good information is anything but 
depressing.  The truth in all aspects of life sometimes is not wonderful 
and always providing and easy solution, however in the truth there is 
always great reward, in this scenario of pc the reward could be your 
life.  PLEASE attend our free meetings and extend or save 
yours.  Henri Plunkett


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Jerry Bylander - Newsletter Editor

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